Answers? Questionable.

23 Mar

So this week I went to one more doctor (rheumatologist) to get an answer on the lupus question.

Instead I got a whole lot more questions.

As I’ve been struggling with my health, I’ve also been struggling with the label that would at least give me some direction to struggle IN, the thought being that once you name something it can’t hold power over you anymore.

That IS how that old legend works, right?

Sadly, I need 9 more tests, which they took enough blood for to do, along with some extra that will be enough to do a few tests for some other patients in the clinic as well. If it worked that way.

The doctor is not inclined to think this is lupus though. Thank God for that! It could be a really nasty fibro flare (really possible). It could be some other connective tissue disorder which is the rheumatology equivalent to calling my son PDD-NOS when we had him tested for autism (Pervasive Developmental Disorder Not Otherwise Specified – meaning he’s on the autism spectrum but they don’t really want to say where…)

So. No answers. Now it’s back to life as usual, trying to keep myself distracted and focusing on the me in the moment, and not worrying about what I MIGHT have – a neat trick under the best of circumstances.

At least I have plenty to keep me busy, now that I’ve got contest entries to score (I judge various writing contests this time of year. Really hoping for that fabulous story to be lurking somewhere in this stack…)

I wish I were better at patience!

What’s your favorite distraction when you have to wait for something important?


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